Chakraborty A

Walke E

Bainbridge R

Bailie R

Matthews V

Larkins S

Burgess CP

Askew D

Langham E

Smorgon S

Swaminathan G

Cameron D

Piccoli T

Passey M

2022-12-26

Aboriginal and Torres Strait Islander peoples' (hereafter respectfully referred to as Indigenous Australians) experiences of health care are shaped by historical, social and cultural factors, with cultural security critical to effective care provision and engagement between services and community. Positive patient experiences are associated with better health outcomes. Consequently, it is an accreditation requirement that primary health care (PHC) services must formally gather and respond to patient feedback. However, currently available patient feedback tools were not developed with Indigenous Australians, and do not reflect their values and world views. Existing tools do not capture important experiences of care of Indigenous Australians in PHC settings, nor return information that assists services to improve care. Consistent with the principles of Indigenous Data Sovereignty, we will co-design and validate an Indigenous-specific Patient Reported Experience Measure (PREM) that produces data by and for community, suitable for use in quality improvement in comprehensive PHC services. This paper presents the protocol of the study, outlining the rationale, methodologies and associated activities that are being applied in developing the PREM. Briefly, guided by an Aboriginal and Torres Strait Islander Advisory Group, our team of Indigenous and non-Indigenous researchers, service providers and policy makers will use a combination of Indigenous methodologies, participatory, and traditional western techniques for scale development. We will engage PHC service staff and communities in eight selected sites across remote, regional, and metropolitan communities in Australia for iterative cycles of data collection and feedback throughout the research process. Yarning Circles with community members will identify core concepts to develop an "Experience of Care Framework", which will be used to develop items for the PREM. Staff members will be interviewed regarding desirable characteristics and feasibility considerations for the PREM. The PREM will undergo cognitive and psychometric testing.

University Centre for Rural Health, The University of Sydney, Lismore, NSW 2480, Australia.

Poche Centre for Indigenous Health, Faculty of Health and Behavioural Sciences, The University of Queensland, St Lucia, QLD 4067, Australia.

College of Medicine and Dentistry, James Cook University, Townsville, QLD 4811, Australia.

NT Health, Northern Territory Government, Casuarina, NT 0811, Australia.

School of Medicine, Faculty of Medicine, The University of Queensland, St Lucia, QLD 4067, Australia.

School of Public Health, Faculty of Medicine, The University of Queensland, St Lucia, QLD 4067, Australia.

The Royal Australian College of General Practitioners (RACGP), East Melbourne, VIC 3002, Australia.

Australian Commission on Safety and Quality in Health Care (ACSQHC), Sydney, NSW 2000, Australia.

Int J Environ Res Public Health. 2022 Dec 26;20(1):357. doi: 10.3390/ijerph20010357.

0000-0003-1837-1224

0000-0001-6962-4231

0000-0001-5966-3368

0000-0002-1319-257X

0000-0003-3943-620X

0000-0002-1824-5108

0000-0001-5766-0235

https://pubmed.ncbi.nlm.nih.gov/36612678/?otool=iaurydwlib

https://hdl.handle.net/10137/12363

20

Humans

Australia

*Australian Aboriginal and Torres Strait Islander Peoples

Native Hawaiian or Other Pacific Islander/psychology

Primary Health Care/methods

Patient Reported Outcome Measures

*Health Services, Indigenous

VOICE-Validating Outcomes by Including Consumer Experience: A Study Protocol to Develop a Patient Reported Experience Measure for Aboriginal and Torres Strait Islander Peoples Accessing Primary Health Care.

Journal Article

Publication