Jones, Yomei

Truong, Mandy

Preece, Cecilia

Cass, Alan

Heerink, Fiona

McDonald, Stephen

Jones, Scott

Mallett, Andrew John

Majoni, Sandawana William

Sajiv, Cherian

Patankar, Khalil

Mulholland, Eddie

Woldeyohannes, Solomon

Lawton, Paul

2024-11-24

In Australia, kidney failure treatment disparities exist between Aboriginal and/or Torres Strait Islander (First Nations) and non-First Nations people. Despite persistent calls from First Nations patients with kidney failure, they are less likely to have treatment that allows them to live at home.This is a prospective, multicentre study based in Australia. The aim of the study is to characterise the socioeconomic, environmental, health service and biomedical factors driving the health outcomes and patterns of health service utilisation experienced by First Nations patients and investigate whether health service changes to address these identified barriers can achieve higher rates of renal replacement therapy at home on country. This will be achieved by mixed-methods data collection at health service (audit and process data), staff (surveys and qualitative interviews) and patient (survey testing, feedback sessions, health outcomes) levels. A process evaluation will identify barriers and enablers to health services changes in relation to cultural safety. Baseline and follow-up data will be compared to assess the extent to which health services change their service delivery and the impact on health outcomes for First Nations patients with kidney failure. Qualitative and quantitative data will be integrated to provide an in-depth understanding of project outcomes and impacts.This study is funded by the National Health and Medical Research Council of Australia (GNT1158075). Ethics approval has been obtained so far from the Human Research Ethics Committee (HREC) of the Northern Territory Department of Health and Menzies School of Health Research (2019-3530), Far North Queensland HREC (2023/QCH/99606 (Nov ver 4)-1732), the Central Adelaide Local Health Network HREC (2023/HRE00209), the Aboriginal Health Council of South Australia (AHREC Protocol #: 04-23-1078), the Aboriginal Health and Medical Research Council of New South Wales (AH&MRC HREC reference: 2230/24) and the Far North Queensland Human Research Ethics Committee (FNQ HREC reference: HREC/2023/QCH/99606 (Nov ver 4)-1732). Study participants, policy makers and community organisations will be provided with updates of study findings. Dissemination of study findings will be through peer-reviewed publications and conference presentations.ACTRN12623001241628.

Wellbeing and Preventable Chronic Diseases, Menzies School of Health Research, Casuarina, Northern Territory, Australia.

School of Nursing and Midwifery, Monash University, Clayton, Victoria, Australia.

Australian Institute of Family Studies, Southbank, Victoria, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

ANZDATA Registry, South Australia Health and Medical Research Institute, Adelaide, South Australia, Australia.

Faculty of Medicine, University of Adelaide, Adelaide, South Australia, Australia.

Department of Nephrology, John Hunter Hospital, New Lambton Heights, New South Wales, Australia.

Department of Renal Medicine, Townsville Hospital and Health Service, Townsville, Queensland, Australia.

James Cook University Faculty of Medicine Health and Molecular Sciences, Townsville, Queensland, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

Department of Renal Medicine, Royal Darwin Hospital, Casuarina, Northern Territory, Australia.

Flinders University Northern Territory Medical Program, Darwin, Northern Territory, Australia.

Department of Renal Medicine, Alice Springs Hospital, Alice Springs, Northern Territory, Australia.

Department of Renal Medicine, Royal Perth Hospital, Perth, Western Australia, Australia.

Sacred Business Services, Darwin, Northern Territory, Australia.

School of Translational Medicine, Monash University, Melbourne, Victoria, Australia.

Menzies School of Health Research, Casuarina, Northern Territory, Australia paul.lawton@menzies.edu.au.

School of Translational Medicine, Monash University, Melbourne, Victoria, Australia.

BMJ Open . 2024 Nov 24;14(11):e095727. doi: 10.1136/bmjopen-2024-095727.

2044-6055

0000-0002-8752-2551

0000-0002-5754-4821

https://pubmed.ncbi.nlm.nih.gov/39581708/?otool=iaurydwlib

https://hdl.handle.net/10137/13829

Dialysis

End stage renal failure

Health Equity

Health Services Accessibility

Health policy

Quality Improvement

Humans

Prospective Studies

Native Hawaiian or Other Pacific Islander

Australia

Health Services, Indigenous

Observational Studies as Topic

Renal Insufficiency

Multicenter Studies as Topic

Health Services Accessibility

Renal Replacement Therapy

Study protocol: Return to Country, an Australia-wide prospective observational study about returning First Nations renal patients home.

Journal Article

Publication