Please use this identifier to cite or link to this item: https://hdl.handle.net/10137/5428
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dc.contributor.authorIvers RQen
dc.contributor.authorHunter Ken
dc.contributor.authorClapham Ken
dc.contributor.authorCoombes Jen
dc.contributor.authorFraser Sen
dc.contributor.authorLo Sen
dc.contributor.authorGabbe Ben
dc.contributor.authorHendrie Den
dc.contributor.authorRead DJen
dc.contributor.authorKimble Ren
dc.contributor.authorSparnon Aen
dc.contributor.authorStockton Ken
dc.contributor.authorSimpson Ren
dc.contributor.authorQuinn Len
dc.contributor.authorTowers Ken
dc.contributor.authorPotokar Ten
dc.contributor.authorMackean Ten
dc.contributor.authorGrant Jen
dc.contributor.authorLyons RAen
dc.contributor.authorJones Len
dc.contributor.authorEades Sen
dc.contributor.authorDaniels Jen
dc.contributor.authorHolland AJAen
dc.date2015en
dc.date.accessioned2018-05-15T23:00:52Zen
dc.date.available2018-05-15T23:00:52Zen
dc.date.issued2015-10-13en
dc.identifier.citationBMJ open 2015-10-13; 5(10): e009826en
dc.identifier.urihttps://hdl.handle.net/10137/5428en
dc.description.abstractAlthough Aboriginal and Torres Strait Islander children in Australia have higher risk of burns compared with non-Aboriginal children, their access to burn care, particularly postdischarge care, is poorly understood, including the impact of care on functional outcomes. The objective of this study is to describe the burden of burns, access to care and functional outcomes in Aboriginal and Torres Strait Islander children in Australia, and develop appropriate models of care. All Aboriginal and Torres Strait Islander children aged under 16 years of age (and their families) presenting with a burn to a tertiary paediatric burn unit in 4 Australian States (New South Wales (NSW), Queensland, Northern Territory (NT), South Australia (SA)) will be invited to participate. Participants and carers will complete a baseline questionnaire; follow-ups will be completed at 3, 6, 12 and 24 months. Data collected will include sociodemographic information; out of pocket costs; functional outcome; and measures of pain, itch and scarring. Health-related quality of life will be measured using the PedsQL, and impact of injury using the family impact scale. Clinical data and treatment will also be recorded. Around 225 participants will be recruited allowing complete data on around 130 children. Qualitative data collected by in-depth interviews with families, healthcare providers and policymakers will explore the impact of burn injury and outcomes on family life, needs of patients and barriers to healthcare; interviews with families will be conducted by experienced Aboriginal research staff using Indigenous methodologies. Health systems mapping will describe the provision of care. The study has been approved by ethics committees in NSW, SA, NT and Queensland. Study results will be distributed to community members by study newsletters, meetings and via the website; to policymakers and clinicians via policy fora, presentations and publication in peer-reviewed journals.en
dc.language.isoengen
dc.subjectACCIDENT & EMERGENCY MEDICINEen
dc.subjectPLASTIC & RECONSTRUCTIVE SURGERYen
dc.titleUnderstanding burn injuries in Aboriginal and Torres Strait Islander children: protocol for a prospective cohort study.en
dc.typeJournal Articleen
dc.typeMulticenter Studyen
dc.typeResearch Support, Non-U.S. Gov'ten
dc.identifier.journaltitleBMJ openen
dc.identifier.doi10.1136/bmjopen-2015-009826en
dc.identifier.pubmedidhttps://www.ezpdhcs.nt.gov.au/login?url=https://www.ncbi.nlm.nih.gov/pubmed//26463225en
dc.subject.meshAdolescenten
dc.subject.meshAustraliaen
dc.subject.meshBurnsen
dc.subject.meshChilden
dc.subject.meshChild, Preschoolen
dc.subject.meshFemaleen
dc.subject.meshFollow-Up Studiesen
dc.subject.meshHumansen
dc.subject.meshIncidenceen
dc.subject.meshInfanten
dc.subject.meshInfant, Newbornen
dc.subject.meshMaleen
dc.subject.meshProspective Studiesen
dc.subject.meshHealth Services, Indigenousen
dc.subject.meshOceanic Ancestry Groupen
dc.subject.meshQuality of Health Careen
dc.identifier.affiliationInjury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia School of Midwifery and Nursing, Flinders University, Adelaide, South Australia, Australia..en
dc.identifier.affiliationInjury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia Poche Centre for Indigenous Health, University of Sydney, Sydney, New South Wales, Australia..en
dc.identifier.affiliationAustralian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia..en
dc.identifier.affiliationInjury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia..en
dc.identifier.affiliationSchool of Midwifery and Nursing, Flinders University, Adelaide, South Australia, Australia..en
dc.identifier.affiliationInjury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia..en
dc.identifier.affiliationDepartment of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia..en
dc.identifier.affiliationSchool of Public Health, Curtin University, Bentley, Western Australia, Australia..en
dc.identifier.affiliationNational Critical Care & Trauma Response Centre, Royal Darwin Hospital, Darwin, Northern Territory, Australia..en
dc.identifier.affiliationAustralian Centre for Children's Burns and Trauma Research, University of Queensland, Brisbane, Queensland, Australia..en
dc.identifier.affiliationPaediatric Burn Unit, Women's and Children's Hospital, Adelaide, South Australia, Australia..en
dc.identifier.affiliationAustralian Centre for Children's Burns and Trauma Research, University of Queensland, Brisbane, Queensland, Australia..en
dc.identifier.affiliationNational Critical Care & Trauma Response Centre, Royal Darwin Hospital, Darwin, Northern Territory, Australia..en
dc.identifier.affiliationPaediatric Burn Unit, Women's and Children's Hospital, Adelaide, South Australia, Australia..en
dc.identifier.affiliationAboriginal Health, Northern and Central Adelaide Local Health Networks, Adelaide, South Australia, Australia..en
dc.identifier.affiliationDepartment of Burns & Plastic Surgery, Welsh Centre for Burns & Plastic Surgery, Swansea, UK..en
dc.identifier.affiliationPoche Centre for Indigenous Health and Wellbeing, Flinders University, Adelaide, South Australia, Australia..en
dc.identifier.affiliationSchool of Midwifery and Nursing, Flinders University, Adelaide, South Australia, Australia..en
dc.identifier.affiliationFarr Institute, Swansea University Medical School, Wales, UK..en
dc.identifier.affiliationFaculty of Medicine, University of Sydney, Sydney, New South Wales, Australia..en
dc.identifier.affiliationDepartment of Aboriginal Health, Baker IDI Heart and Diabetes Institute, Melbourne, Victoria, Australia..en
dc.identifier.affiliationAustralian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia..en
dc.identifier.affiliationFaculty of Medicine, University of Sydney, Sydney, New South Wales, Australia Discipline of Paediatrics and Child Health, The Children's Hospital at Westmead, Sydney, New South Wales, Australia..en
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