Carey, Timothy A; Schouten, Kellie; Wakerman, John; Humphreys, John S; Miegel, Fred; Murphy, Simon; Arundell, Mick

Author(s)

Carey, Timothy A

Schouten, Kellie

Wakerman, John

Humphreys, John S

Miegel, Fred

Murphy, Simon

Arundell, Mick

Publication Date

2016-07-18

Abstract

In the Northern Territory (NT) there is a lack of respite services available to palliative care patients and their families. Indigenous people in the NT suffer substantially higher rates of poorly controlled chronic disease and premature mortality associated with poor heath than the Australian population as a whole. The need for a flexible, community based, culturally appropriate respite service in Alice Springs was identified and, after the service had been operating for 10 months, a qualitative evaluation was conducted to investigate the experiences of people involved in the use and operation of the service. Semi-structured interviews were conducted with patients, carers, referrers, and stakeholders. A total of 20 people were interviewed. Interpretative Phenomenological Analysis was used inductively to analyse the transcripts. Two case studies are also described which illustrate in greater detail the impact the respite service has had on people's lives. From the semi-structured interviews, two superordinate themes along with a number of sub themes were developed. The two superordinate themes described both "The Big Picture" considerations as well as the pragmatics of "Making the Service Work". The sub themes highlighted issues such as being stuck at home and the relief that respite provided. The case studies poignantly illustrate the difference the respite service made to the quality of life of two patients. The findings clearly indicate an improvement in quality of life for respite patients and their carers. The respite service enabled improved care coordination of chronic and complex patients as well as improved medication compliance and symptom management. As a result of this evaluation a number of recommendations to continue and improve the service are provided.

Citation

BMC palliative care 2016-07-18; 15: 62

Pubmed ID

https://pubmed.ncbi.nlm.nih.gov/27430257/?otool=iaurydwlib

Link

https://hdl.handle.net/10137/5337

MESH subject

Adult Day Care Centers

Attitude to Health

Caregivers

Chronic Disease

Day Care, Medical

Delivery of Health Care

Health Services, Indigenous

Humans

Northern Territory

Palliative Care

Respite Care

Rural Health

Terminally Ill

Quality of Life

Title

Improving the quality of life of palliative and chronic disease patients and carers in remote Australia with the establishment of a day respite facility.

Type of document

Journal Article

Entity Type

Publication

Author(s)	Carey, Timothy A Schouten, Kellie Wakerman, John Humphreys, John S Miegel, Fred Murphy, Simon Arundell, Mick
Publication Date	2016-07-18
Abstract	In the Northern Territory (NT) there is a lack of respite services available to palliative care patients and their families. Indigenous people in the NT suffer substantially higher rates of poorly controlled chronic disease and premature mortality associated with poor heath than the Australian population as a whole. The need for a flexible, community based, culturally appropriate respite service in Alice Springs was identified and, after the service had been operating for 10 months, a qualitative evaluation was conducted to investigate the experiences of people involved in the use and operation of the service. Semi-structured interviews were conducted with patients, carers, referrers, and stakeholders. A total of 20 people were interviewed. Interpretative Phenomenological Analysis was used inductively to analyse the transcripts. Two case studies are also described which illustrate in greater detail the impact the respite service has had on people's lives. From the semi-structured interviews, two superordinate themes along with a number of sub themes were developed. The two superordinate themes described both "The Big Picture" considerations as well as the pragmatics of "Making the Service Work". The sub themes highlighted issues such as being stuck at home and the relief that respite provided. The case studies poignantly illustrate the difference the respite service made to the quality of life of two patients. The findings clearly indicate an improvement in quality of life for respite patients and their carers. The respite service enabled improved care coordination of chronic and complex patients as well as improved medication compliance and symptom management. As a result of this evaluation a number of recommendations to continue and improve the service are provided.
Citation	BMC palliative care 2016-07-18; 15: 62
Pubmed ID	https://pubmed.ncbi.nlm.nih.gov/27430257/?otool=iaurydwlib
Link	https://hdl.handle.net/10137/5337
MESH subject	Adult Day Care Centers Attitude to Health Caregivers Chronic Disease Day Care, Medical Delivery of Health Care Health Services, Indigenous Humans Northern Territory Palliative Care Respite Care Rural Health Terminally Ill Quality of Life
Title	Improving the quality of life of palliative and chronic disease patients and carers in remote Australia with the establishment of a day respite facility.
Type of document	Journal Article
Entity Type	Publication

Improving the quality of life of palliative and chronic disease patients and carers in remote Australia with the establishment of a day respite facility.

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