"I Don't Really Know What Diabetes Is": A Qualitative Study Exploring the Experiences of Aboriginal and Torres Strait Islander Young People Aged 10 to 25 Years Living With Type 2 Diabetes in Northern and Central Australia.

2022-10-01

Weaver, Emma

Freeman, Natasha

Mack, Shiree

Titmuss, Angela

Dowler, James

Corpus, Sumaria

Hyatt, Teresa

Ellis, Elna

Sanderson, Cheryl

Connors, Christine

Moore, Elizabeth

Silver, Bronwyn

Azzopardi, Peter

Maple-Brown, Louise

Kirkham, Renae

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia. Electronic address: emma.weaver@menzies.edu.au.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia; Department of Paediatrics, Division of Women, Children and Youth, Royal Darwin Hospital, Darwin, Northern Territory, Australia.

Department of Paediatrics, Alice Springs Hospital, Alice Springs, Northern Territory, Australia.

Danila Dilba Health Services, Darwin, Northern Territory, Australia; Endocrine Department, Royal Darwin Hospital, Darwin, Northern Territory, Australia.

Population and Primary Health Care, Top End Health Service, Northern Territory Department of Health, Darwin, Northern Territory, Australia.

Department of Medicine, Alice Springs Hospital, Alice Springs, Northern Territory, Australia.

Danila Dilba Health Services, Darwin, Northern Territory, Australia; Aboriginal Medical Service Alliance Northern Territory, Alice Springs, Northern Territory, Australia.

Population and Primary Health Care, Top End Health Service, Northern Territory Department of Health, Darwin, Northern Territory, Australia.

Aboriginal Medical Service Alliance Northern Territory, Alice Springs, Northern Territory, Australia.

Central Australian Aboriginal Congress, Alice Springs, Northern Territory, Australia.

Burnet Institute, Melbourne, Victoria, Australia; Wardliparingga Aboriginal Research Unit, South Australian Health and Medical Research Institute, Adelaide, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia; Endocrine Department, Royal Darwin Hospital, Darwin, Northern Territory, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

Aboriginal and Torres Strait Islander young people

age-appropriate support

diabète de type 2

experiences and perspectives

expériences et points de vue

honte et stigmatisation

jeunes aborigènes et insulaires du détroit de Torrès

shame and stigma

soutien adapté à leur âge

type 2 diabetes

Journal Article

Publication

Our aim in this study was to gain an understanding of the experiences of Aboriginal and Torres Strait Islander young people aged 10 to 25 years with type 2 diabetes (T2D) living in Northern and Central Australia.In this qualitative study, we explored participants' experiences of T2D using a social constructionist epistemology and a phenomenologic methodology. Twenty-seven young people participated in semistructured in-depth interviews from 4 primary health-care sites.Three major constructs emerged. Young people experienced a normalization-shame paradox in response to their diagnosis (partly related to that "everyone has diabetes," as well as the fear that friends "might judge [me]"), had suboptimal levels of understanding of T2D ("I don't really know what diabetes is. I just need somebody to explain to me a bit more") and experienced multiple barriers inhibiting their T2D management. Barriers included complex lives ("I have a rheumatic heart disease […] then they told me that I have diabetes…I have two things") and the availability of support ("[I] talk to my mum…I talk to my aunty too…I don't talk to anyone else"). Successful management requires support from health professionals and family and includes strengthening social networks and educational opportunities.Our findings reinforce the need for alternative support systems tailored to the specific needs of young Aboriginal and Torres Strait Islander people with T2D. Enhanced models of care must be codesigned with young people and their communities and include a focus on shifting norms and expectations about youth T2D to reduce diabetes stigma and broaden social support and consider the delivery of health information in youth-friendly environments.

link

Can J Diabetes . 2022 Oct;46(7):722-729. doi: 10.1016/j.jcjd.2022.04.010. Epub 2022 May 5.

2352-3840

https://pubmed.ncbi.nlm.nih.gov/35963668/?otool=iaurydwlib